The ACARE LevelUp Podcast series planned as All Things Angioedema, will be launched in as a 36 episode series with a new episode being published every 2 weeks. All things Urticaria has been one of the most successful formats in the UCARE LevelUp program, with more than 50 episodes and 10 thousand listeners in the 18-month period.
All Things Angioedema podcast episodes will be approximately 15 minute long and will be hosted by Dr. Thomas Buttgereit (Germany), one of the stars of the ACARE network. They will talk to physicians, patient organizations and people of interest in the angioedema community from around the world to teach listeners all the ins-and-outs of angioedema.
If you have any suggestions for future podcast topics or comments, please reach out to Rebekka Locke at rebekka.lockeATga2len.berlin.
If you have any questions on technical issues, please reach out to Becky Bradley at EPG Health at becky.bradleyATepghealth.com
All Things Angioedema Podcast Episode 7: Treating hereditary angioedema
Join Professor Anna Valerieva and Dr Thomas Buttgereit as they discuss the burden of living with rare forms of angioedema, particularly hereditary angioedema (HAE). Drawing from her expertise as an allergologist at the Medical University of Sofia, Bulgaria, Professor Valerieva emphasises the importance of viewing patients holistically and considering their preferences. The experts also review how the introduction of new treatments has changed patients’ lives and minimised recurrent angioedema attacks.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA2LEN ACARE network and its activities please visit https://acare-network.com/. Additional resources relating to the topics discussed in this episode can be found here: Mitigating disparity in healthcare resources between countries for management of hereditary angioedema and Therapeutic management of hereditary angioedema: past, present, and future.
All Things Angioedema Podcast Episode 6: Tackling acquired angioedema and related comorbidities
Join Dr Andrea Zanichelli and Dr Thomas Buttgereit as they discuss complex angioedema cases, including acquired angioedema diagnosed in later life. Drawing from his perspective as Head of the Angioedema Center in Milan, Italy, Dr Zanichelli explores how C1 and C4 inhibitor deficiencies may indicate a possible acquired angioedema diagnosis, common comorbidities due to this condition, and the current treatment options available.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA2LEN ACARE network and its activities please visit https://acare-network.com/. Additional resources relating to the topics discussed in this episode can be found here: Diagnosis, course, and management of angioedema in patients with acquired C1-inhibitor deficiency, A nationwide study of acquired C1-inhibitor deficiency in France: characteristics and treatment responses in 92 patients, Icatibant treatment for acquired C1-inhibitor deficiency: a real-world observational study, Acquired C1-inhibitor deficiency and lymphoproliferative disorders: a tight relationship and Splenic marginal zone lymphomas in acquired C1-inhibitor deficiency: clinical and molecular characterization.
All Things Angioedema Podcast Episode 5: An ENT view of angioedema
Join Dr. Antonia Scherer and Dr. Thomas Buttgereit as they discuss the impact of recurrent hereditary angioedema on the larynx. Drawing from her perspective as an ENT expert, Dr Scherer explores how laryngeal angioedema is assessed in the clinic, and the current treatment options available.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA2LEN ACARE network and its activities please visit https://acare-network.com/. Additional resources relating to the topics discussed in this episode can be found here: The international WAO/EAACI guideline for the management of hereditary angioedema—The 2021 revision and update and Efficacy of Different Medical Therapies for the Treatment of Acute Laryngeal Attacks of Hereditary Angioedema due to C1-esterase Inhibitor Deficiency
All Things Angioedema Podcast Episode 4: Androgens in hereditary angioedema
Dr Thomas Buttgereit is joined by Dr Carolina Vera to discuss the use of attenuated androgens in the treatment of hereditary angioedema and their associated risks and side effects. Both exerts delve into the safety, ethical considerations and alternative treatment options to using androgens for the treatment of hereditary angioedema. Dr Vera concludes the discussion with an in-depth explanation of the SHAERPA project, focusing on the discontinuation of androgen use in individuals with angioedema, and the benefits this project can have in providing guidance on alternative medications.
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA2LEN ACARE network and its activities please visit https://acare-network.com/. Additional resources relating to the topics discussed in this episode can be found here: The international WAO/EAACI guideline for the management of hereditary angioedema—The 2021 revision and update, Attenuated androgen discontinuation in patients with hereditary angioedema: a commented case series and and WAO Guideline for the Management of Hereditary Angioedema.
All Things Angioedema podcast episode 3: Angioedema and EAACI 2023
Professor Jason Fok joins Dr Thomas Buttgereit to discuss angioedema updates from the European Academy of Allergy and Clinical Immunology (EAACI) Congress 2023 and the role EAACI has in disseminating novel insights in angioedema treatment and diagnosis. Dr Buttgereit takes a deep dive into how data presented at EAACI congresses can be implemented into specialist ACARE clinics and the benefits the congress has in aiding clinicians to implement the latest guidelines for the benefit of patients.For more information about the GA2LEN ACARE network and its activities please visit https://acare-network.com/. Additional resources relating to the topics discussed in this episode can be found here: Biomarkers in hereditary angioedema, Managing diagnosis, treatment, and burden of disease in hereditary angioedema patients with normal C1-esterase inhibitor, The expanding spectrum of mutations in hereditary angioedema, and Recurrent angioedema: Diagnosing the rare and the frequent
All Things Angioedema Podcast Episode 2: What is angioedema and what is not?
Welcome to our second episode of the All Things Angioedema – Learning about Angioedema with Dr. Thomas Buttgereit PodcastDr Thomas Buttgereit is joined by Professor Markus Magerl, leader of the angioedema clinics at ACARE Berlin. Their conversation explores the clinical features of recurrent angioedema and the essential differential diagnoses that dermatologists must bear in mind when encountering facial swellings.Listen on SPOTIFYListen on APPLE PODCASTSDo you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA²LEN ACARE network and its activities please visit the ACARE homepage.. Additional resources relating to the topics discussed in this episode can be found here: Definition, aims, and implementation of GA2LEN/HAEi Angioedema Centers of Reference and Excellence.
All Things Angioedema Podcast Episode 1: What “angioedemologists” do and what motivates them
Welcome to our first episode of the All Things Angioedema – Learning about Angioedema with Dr. Thomas Buttgereit PodcastDr Thomas Buttgereit welcomes the renowned urticaria specialist, Professor Marcus Maurer. Professor Maurer is the founding force behind both ACARE and UCARE, and spearheads the popular podcast, All Things Urticaria. The pair delve into the significance of angioedema across all areas of medicine and offer insights into the role and responsibilities of angioedemologists. They also shed light on the complexities of tackling angioedema, highlighting the invaluable role of the ACARE global network in tackling these challenges.Listen on SPOTIFYListen on APPLE PODCASTSDo you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
For more information about the GA²LEN ACARE network and its activities please visit the ACARE homepage.. Additional resources relating to the topics discussed in this episode can be found here: Definition, aims, and implementation of GA2LEN/HAEi Angioedema Centers of Reference and Excellence.
