Scientific Project

Congratulations! CARE has enrolled the first 50 patients. 50 of many more to follow... Thanks to the CARE centers in Moscow and Berlin. CARE aims to learn more about different [...]

Hereditary Angioedema in Pregnancy   Hereditary angioedema (HAE) is a rare but serious disease that is inherited. Due to a congenital genetic defect, the C1-esterase inhibitor is only partially effective [...]

MENTALIST - Unmet needs in hereditary angioedema – a global physician perspective Aim: To identify and rank unmet needs in hereditary angioedema (HAE) including HAE due to C1INH deficiency and HAE with normal C1INH values with [...]

Dear ACARE and UCARE members: You are kindly invited to participate in our new project: Knowledge, attitudes, perceptions, experiences, and satisfaction about the use of Patient Reported Outcomes Measures (PROMs) [...]