ACARE/UCARE Project PROMUSE

Knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases.

Primary Objectives:

To describe the knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases in order to increase engagement and uptake of these tools in clinical practice.

Secondary objectives:

  • To develop a questionnaire that evaluates knowledge, perceptions and limitations of physicians in the use of patient-reported outcome measures (PROMs) in urticaria, angioedema, allergic rhinitis, allergic conjunctivitis, atopic dermatitis, rhinosinusitis and asthma.
  • To describe the factors that influence PROs data interpretation or use in clinical practice.
  • To identify what PROs have the most utility for healthcare professionals during their daily clinical practice according to the specific disease studied.

Study type: Questionnaire

This project has ended.

1.
Usage prevalence of angioedema patient-reported outcome measures: results from the UCARE and ACARE PROMUSE study.

Cherrez-Ojeda I, Bousquet J, Giménez-Arnau A, Godse K, Krasowska D, Bartosińska J, Szczepanik-Kułak P, Wawrzycki B, Kolkhir P, Allenova A, Allenov A, Tkachenko S, Teovska Mitrevska N, Mijakoski D, Stoleski S, Kolacinska-Flont M, Kuprys-Lipinska I, Molinska J, Kasperska-Zając A, Zajac M, Zamlynski M, Mihaltan F, Ulmeanu R, Zalewska-Janowska A, Tomaszewska K, Al-Ahmad M, Al-Nesf MA, Ibrahim T, Aqel S, Pesqué D, Rodríguez-González M, Wakida-Kuzunoki GH, Ramon GD, Ramon GN, Neisinger S, Bonnekoh H, Rukhadze M, Khoshkhui M, Fomina D, Larenas-Linnemann D, Košnik M, Oztas Kara R, Caballero López CG, Liu Q, Ivancevich JC, Ensina LF, Rosario N, Kvedariene V, Ben-Shoshan M, Criado RFJ, Bauer A, Cherrez A, Cherrez S, Chong-Neto H, Rojo-Gutierrez MI, Rudenko M, Larco Sousa JI, Lesiak A, Matos E, Tinoco I, Crespo Shijin C, Hinostroza Logroño R, Sagñay JC, Faytong-Haro M, Robles-Velasco K, Zuberbier T, Maurer M.
J Allergy Clin Immunol Pract. 2024 May 9:S2213-2198(24)00464-1. doi: 10.1016/j.jaip.2024.04.056. Online ahead of print.

PMID: 38734372 No abstract available.

2.
Patient-Reported Outcome Measures in Atopic Dermatitis and Chronic Urticaria Are Underused in Clinical Practice.

Cherrez-Ojeda I, Bousquet J, Giménez-Arnau A, Godse K, Krasowska D, Bartosińska J, Szczepanik-Kułak P, Wawrzycki B, Kolkhir P, Allenova A, Allenova A, Tkachenko S, Teovska Mitrevska N, Mijakoski D, Stoleski S, Kolacinska-Flont M, Kuprys-Lipinska I, Molinska J, Kasperska-Zając A, Zajac M, Zamlynski M, Mihaltan F, Ulmeanu R, Zalewska-Janowska A, Tomaszewska K, Al-Ahmad M, Al-Nesf MA, Ibrahim T, Aqel S, Pesqué D, Rodríguez-González M, Wakida-Kuzunoki GH, Ramon G, Ramon G, Neisinger S, Bonnekoh H, Rukhadze M, Khoshkhui M, Fomina D, Larenas-Linnemann D, Košnik M, Oztas Kara R, Caballero López CG, Liu Q, Ivancevich JC, Ensina LF, Rosario N, Kvedariene V, Ben-Shoshan M, Criado RFJ, Bauer A, Cherrez A, Chong-Neto H, Rojo-Gutierrez MI, Rudenko M, Larco Sousa JI, Lesiak A, Matos E, Muñoz N, Tinoco I, Moreno J, Crespo Shijin C, Hinostroza Logroño R, Sagñay J, Faytong-Haro M, Robles-Velasco K, Zuberbier T, Maurer M.
J Allergy Clin Immunol Pract. 2024 Jun;12(6):1575-1583.e1. doi: 10.1016/j.jaip.2024.03.050. Epub 2024 Apr 9.

PMID: 38604531

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