Here you will find in the future an overview of upcoming projects
SHERPA project: The preparations have begun
Background: SHAERPA: Stopping androgen treatment in patients with HAE – characterization of reasons and protocols and development of advice for patients and physicians This international, multi-center, prospective and partly retrospective, observational, cross-sectional academic study aims to develop guidance on how to discontinue androgen treatment based on patient data. We hope this project will spread globally and to help improve patient care.
SHEAERPA is a project of the GA2LEN HAEi network of Angioedema Centers of Reference and Excellence (ACARE). The ACARE network encourages all of its member physicians as well as non-ACARE physicians who treat patients with HAE to participate in this project. Study type: Questionnaire (physician and patient)