If your center is a member of the ACARE network, you can initiate a ACARE scientific study. ACAREs who want to apply to run a project should check on our website for ongoing, past, and approved projects in preparation. If you believe your project to be unique enough, please download the application form and send it via email to the ACARE OFFICE at info(at)acare-network.com.
After checking that everything is in order, the ACARE office sends your application out to the Scientific Advisory Board for review.
If they reject your proposal, you will be given feedback and the opportunity to review. If the decision is affirmative: Congratulations!
The Board will nominate a responsible ACARE Steering Committee project advisor (ASCPA) and the ACARE office will inform you of the affirmative decision and connect you to your ASPCA.
Your ASCPA is your first point of contact for any questions you may have and will assist you with the first steps towards initiating your project. Depending on the type of project, your milestones may vary.
The first step is to form a Steering Committee (Ste.Com) for your scientific project. After that, you need to develop your project tools and documents and achieve ethics approval. The ACARE office can supply you with templates for patient surveys, patient information and informed consent forms.
Then, you need to develop your database, examples of which can be seen on our sharing platform SHASAF, under scientific projects.
A further milestone would be a pilot study in which the developed instruments are tested in a proof-of-concept study at your steering committee’s centers before your global rollout.
Please note that while the ACARE office is happy to assist, the final responsibility to supply all needed documents such as protocols, ethic committee applications etc. lies with the project leader.
Here is an exemplary list of project milestones:
You can discuss possible Steering Committee members with your ASCPA. The ASCPA may also make suggestions on whom to invite to the committee. It should have 3-7 members, be geographically diverse, have a strong interest in the project and work as project ambassadors in their region and within their scientific communities.
Send project related documents to the ACARE office so they can be uploaded to the website and SHASAF member area. Include translations as they become available.
Write a project announcement note, including the start and end date of the project, co-authorship requirements and a brief description of the project. The announcement will be sent to all ACAREs via the ACARE office.
Make sure that co-authorship criteria are as defined as possible.
Here again, please keep the ACARE office cc on all communication.
Promote your project: make sure that there is good uptake of the project within the ACARE network.
Invite participating ACARE centers to send updates on the recruitment of patients to the project and to periodically send datasets for review.
The ACARE Office will ask for periodic updates, please keep us in the loop!
Communicate the completion of the study to the ACARE network and work with your Steering Committee on the publication strategy and on getting the paper(s) ready to be submitted.
The previously defined authorship criteria should be applied when developing the manuscript(s). We will make an announcement on our website to celebrate your publication.
ACARE is the largest network of angioedema-treating specialists worldwide. This means that not only will conducting your project in our network give you access to some of the best angioedemologists worldwide, but it will also broaden the pool of study participants. In addition, you will get support from the ACARE office as well as senior physicians in the role of ASPCA.
Watch our Webinar on how to conduct a project below
Note: This webinar was created for our twin network UCARE, however the procedures and mechanisms are the same.
ACARE Scientific Project Application Form: Application_for_ACARE_project
UCARE Scientific Project Presentation (same as for ACARE): How_to_run_a_UCARE_Project