The Board will nominate a responsible ACARE Steering Committee project advisor (ASCPA) and the ACARE office will inform you of the affirmative decision and connect you to your ASPCA.
Your ASCPA is your first point of contact for any questions you may have and will assist you with the first steps towards initiating your project. Depending on the type of project, your milestones may vary.
The first step is to form a Steering Committee (Ste.Com) for your scientific project. After that, you need to develop your project tools and documents and achieve ethics approval. The ACARE office can supply you with templates for patient surveys, patient information and informed consent forms.
Then, you need to develop your database, examples of which can be seen on our sharing platform SHASAF, under scientific projects.
A further milestone would be a pilot study in which the developed instruments are tested in a proof-of-concept study at your steering committee’s centers before your global rollout.
Please note that while the ACARE office is happy to assist, the final responsibility to supply all needed documents such as protocols, ethic committee applications etc. lies with the project leader.
Here is an exemplary list of project milestones: