ACARE - Angioedema Centers of Reference and Excellence
The GA2LEN | HAEi ACARE network is a joint initiative by GA²LEN, the Global Allergy and Asthma European Network, and HAEi, the global umbrella organization for the world’s hereditary angioedema patient groups.
The ACARE program is a joint initiative by GA²LEN and HAE International (HAEi) for developing and accrediting an interactive network of centers of reference and excellence in angioedema. Angioedema is a common and debilitating condition and can be a challenge for both patients and treating physicians, especially when recurrent.
The main aims of the GA²LEN | HAEi angioedema centers of reference and excellence (ACARE) program and network:
provide excellence in angioedema management
increase the knowledge of angioedema by research and education
promote the awareness of angioedema by advocacy activities.
broaden access to modern HAE medicines in countries where they are available
make concerted and systematic efforts to bring modern medicines to countries where there are none
Increase of the quality of life and information exchange worldwide
MAKE A DIFFERENCE 5 – MITIGATING DISPARITY-PATIENT AND PHYSICIAN PERSPECTIVES IN THE TREATMENT OF HAE
This fifth webinar in our successful Make a Difference series, focuses on patient stories and their journeys in living with HAE in Eastern Europe. We will explore the changes that have happened over the last couple of years, the roles that patients, patient...
If you want to improve the collaboration with your patients to better control their HAE, we recommend that you advise your patients to use the new HAE TrackR app. Developed by fellow HAE patients at HAE International (HAEi), HAE TrackR is an easy-to-use electronic...
Recording: Make A Difference 4th Webinar – ACQUIRED C1-INH DEFICIENCY (AAE) – January 19th, 2022 – 5:00 pm CET
Five webinars focused on the diagnostic work-up in patients with recurrentangioedema including hereditary angioedema (HAE), therapy control andoptimization.The overall aim of this webinar series is to help to provide the optimaltherapy to all patients with recurrent...