MENTALIST – Unmet needs in hereditary angioedema – a global physician perspective
Aim: To identify and rank unmet needs in hereditary angioedema (HAE) including HAE due to C1INH deficiency and HAE with normal C1INH values with known or unknown causative mutations.
Background: In recent years, new scientific findings on HAE and the establishment of international treatment guidelines have contributed to a broader understanding of the disease and improved the quality of life of patients with HAE. Therefore, it is important to understand, from the physician perspective, what the current unmet needs in HAE globally are and to raise awareness on specifics with updated supporting data.
This study will only run for 30 days, from September 1 to September 30 and is open to all HAE treating physicians.
The survey takes about 15 minutes to complete.
To take part, please reach out to Dr. Thomas Buttgereit: thomas.buttgereitATcharite.de
The study is supported by CSL Behring.
Read more news from ACARE
- March 2, 2023
The HAE Relay: Expert Exchange video series is designed to provide engaging and informative bite-size content to healthcare professionals who are either new to hereditary angioedema (HAE), or are established [...]
- September 1, 2023
Welcome to our second episode of the All Things Angioedema - Learning about Angioedema with Dr. Thomas Buttgereit Podcast Dr Thomas Buttgereit is joined by Professor Markus Magerl, leader of [...]
- July 28, 2023
A very warm welcome to Clínica Universidad de Navarra, who has joined the ACARE network on July 13, 2023. Head: Marta Ferrer Auditor: Ana M Giménez-Arnau This makes it our [...]